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Chronic Kidney Disease - Shall we tell the patient? New study looks at disclosure of CKD in Primary Care and its affects on self management

6 March 2015

Anne Rogers and Anne Kennedy's latest paper has been published and looks at Chronic Kidney disease. Here are a couple of extracts:

In the UK, health policy has incentivised surveillance of early stage chronic kidney disease (CKD) in primary care with the detection, recording on a register and monitoring of CKD constituting remunerated Quality and Outcomes Framework (QOF) indicators. However, little attention has been paid to the ways in which ‘diagnosis,’ or the recording of pre-conditions, is managed in practice, nor the extent to which disclosure might be considered by (and have implications for) patients.


  • UK health policy incentivizes recording of chronic kidney disease in primary care.

  • Lifestyle and self-management are key to reducing risks of CKD progression.

  • This qualitative study explored patients' subjective awareness of CKD status.

  • Many patients believed they did not have CKD or it was nothing to worry about.

  • Diagnosis for payment can bypass the patient and limits self-management of CKD.

The full paper is here

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