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Many neurological conditions have a long-term impact on quality of life with varying requirements for care and intervention over time. This frequently creates a mismatch between the needs of patients at particular stages in their illness and the care that they receive. The baseline factors and critical events that help to predict care requirements for persons living with long term neurological conditions are poorly understood.
We have developed a web-based resource (NeuroLine) mapping Wessex neurological services; a report on acute admissions (Neuro Intelligence Report); and a report on developing Community Neurology care.
We will carry out surveys, interviews and focus groups with service users and clinicians to identify and better understand the baseline factors and critical events that predict care needs in five neuro LTCs.
This study aims to:
1) Identify and better understand baseline and critical events factors that predict care requirements and unscheduled increase in care.
2) Facilitate future research into risk stratification and the transformation of the delivery of neurological care.
3) Improve access to appropriate neurological resources