Paul Clarkson, Dr Ivaylo Vassilev, Professor Anne Rogers,
Dr Charlotte Brooks, Dr Ingrid Muller, Dr Nicky Wilson, Jem Lawson, Professor
Research aims and questions:
- To design and develop, alongside user led groups, a digital self-management programme that is accessible to people with lower health literacy.
- To link this digital personalised self-management programme with the Genie tool.
- To explore the feasibility of the self-management programme and its integration with the Genie tool for people with joint pain.
Start date: 3rd January 2018
End date: 30th September 2019
- Developing a new social networked self-management tool for people living with joint pain: identifying individuals’ needs and priorities Rheumatology https://doi.org/10.1093/rheumatology/kez108.071
- Paper currently being prepared with a working title of: Exploring the design, development and feasibility of a web-based self-management tool that integrates information and advice with social network support for people with joint pain
(Likely to be submitted to the Journal of Medical Internet Research)
• Community engagement and feedback through collaboration with Radian, the Saints Foundation and Southampton city library service.
• An accessible tool for improving the self-management of joint pain was designed and integrated with the Genie tool.
• Technical and conceptual complexity was associated with the integration of the tools.
• The underlying proposition of each tool was found to be beneficial for people with joint pain, however, tensions were identified with their integration.
• This study has informed a successful research grant to explore the implementation of digital tools into healthcare practice and the development of a future programme grant.